Ive recently been diagnosed with a melanoma in my left eye. It seems from reading peoples posts that they have been given a lot more information than i have received.
Im not sure on sizes, dimensions, or even the official name. I do know that my tumour is relatively thin so they are optimistic about risk of spread. It is next to the nerve at the back of the eye and they had a consultant meeting to decide on the course of treatment. They have ruled out laser and suggested SRS, which will happen at the end of this month (30th) in Sheffield under Prof Ian Rennie who I met at my last visit and was genuinely lovely.
Ive been warned that because of its close proximity to the nerve, I will likely lose my central vision in the eye but may keep some peripheral. I just was hoping for some advice on how the treatment may affect me. Particularly with the run up to Christmas and plans with the Children. Should I expect to be able to carry on as normal?/
Also, any advice on what questions I should be asking? I feel like I get swept up in the system when I visit and I forget to take a second to think about things I should probably be asking.
I am at the Royal Hallamshire on the day before my treatment to have abdominal scans to check for liver spread I suppose. I do have a bit of a sinking feeling, I cant explain, particularly as they have said the risk of spread is low, but I have a loss of appetite and a really strange heavy feeling on my lungs. Certainly no jaundice or itchiness or severe weight loss, so hopefully just stress!?
Anyway, enough rambling. Any advice welcome!